Alec (2013)

Alec's Story...

Alec is considered stable for an almost 12 year old with Duchenne Muscular Dystrophy (DMD). He no longer walks, as bad as that sounds, Mom, Dad & Alec are relieved. Mom and Dad were always scared that the next fall was going to result in a break, and just didn't trust himself. Now that he has a power chair - he has all the confidence in the world. His heart is starting to show signs of disease and his arms are growing weaker. Currently with updated medicine for his heart and increase in dosage to slow down the progression of DMD - Alec is able to play the Xbox all day (if Mom would just let him).

DMD has taken is ability to walk, but not his wit. For the last year, he has been tooling around school and our neighborhood in his power wheelchair. Alec has been spotted being a typical boy with his wheels either pulling buddies around the icy driveway on a sled or treating his sister and a friend to an electronic marry-go-around. Last fall, he participated in the first season of the Miracle League. And just a few weeks ago he became a Boy Scout and he is looking forward to shooting bb guns, firearm and knife safety, leather working, and wood carving. Alec has made himself a goal to be an Eagle Scout.


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