Diagnosis: Pauci Immune Glomerulonephritis (PICGN)
We had originally attributed some lower back pain she was having to soreness from playing basketball. However after a visit to the dental office they noticed her blood pressure was high and recommended we take her in to see her doctor. We followed their advice and our lives have never been the same. It became clear that one of Alyssa’s kidneys was in complete failure and she was in need of a kidney transplant. In November of 2014 we were blessed to find a donor. She had a kidney transplant on November 5, 2014. We have had a few scares of kidney rejection but so far Alyssa’s body has not rejected this kidney.
Alyssa’s PICGN has caused her kidneys to be damaged beyond repair. She will suffer from kidney disease the rest of her life. The life expectancy of the transplanted kidney is 10-15 years so eventually she will need another kidney transplant. Until then we have to keep her on a strict diet and she will take multiple medications for the rest of her life. She is also at a high risk for developing diabetes.
Day in the life: A typical day for Alyssa is ensuring she stays consistent when taking her medications. She must take her medications the same time every day to ensure the kidney does not get rejected. Alyssa had to miss so much school after her initial diagnosis we chose to home school her and her brother John. He insisted on being at each and every one of her medical visits, and could not bear missing out on anything to do with his beloved sister. So we decided home schooling was the best option for our family.