Baylee was born May 15, 2012 in Cape Girardeau, MO just 4 months after her older brother Brayden passed away at the age of 6 from an undiagnosed heart defect. She was born a strong healthy 6lb 7oz ball of energy. Around the age of 1, I noticed her pupils were different sizes and was told it was aniscoria. Later, I noticed only half her face would sweat. We asked every time that we went to a doctor, but none seem worried. Finally, we were sent to an optomologist and she was diagnosed with Horners Syndrome at age 3. They called it congenital and no further study was done.
Then in December, she started having a lot of pain. It started in her hip and arm, then was so bad that she refused to walk. She then became severely constipated and went to her pedi 3 or 4 times and the ER twice. Finally we were referred to an orthopedic surgeon and he ordered X-rays which came back fine and a bone scan and blood cultures. They first thought it was Discitis because her spine showed infection. We were told to immediately drive to Cooks Children's. Baylee then got an MRI, bone marrow aspiration, and an MIGB scan. She was diagnosed with stage 4 Neuroblastoma on Jan 15, 2016, which was also the 4 year anniversary of her brothers death. She has undergone 3 rounds of chemo and stem cell harvest. We are hopeful and playful for full healing!