Bryce (2014)

Bryce's Story...

We were blessed with Bryce Robert Smith on October 8th 2005. He had a rough entry into this world, an emergency C-Section for fetal distress due to cord compression. Which of course was very scary for anyone but in our case our fear was increased since we had lost our first son Tyler to an umbilical cord accident. On assessment he was perfect minus some stress to his head, but he was pink, perfect and ours so we thought nothing about it at the time since we knew this would go down and all would be well. Life was wonderful!!!! Watching him grow and hit all his milestones was the most amazing year of our lives.

Life took a huge turn when he was 14 months old. We had taken him in for his one-year shots; two weeks later I began to notice a huge change in our perfect little boy. I had been a neonatal nurse for 10 years at the time and I knew in my nurse mind what I was seeing was seizures but my momma heart had hoped I was wrong. I did not know I would have to fight our pediatrician for testing. After switching pediatricians and getting a referral to a Pediatric Neurologist our fears were confirmed our little boy was having seizures and a lot of them.

Even being a nurse I had no idea how many different types of seizures people of all ages were suffering with. Bryce was diagnosed with Generalized Progressive Myoclonic Absence Seizures. Medicated at the last EEG, Bryce was having 80+ seizures in an hour lasting a few seconds up to one minute with most of them not being able to be seen on the outside by us. Each seizure causing some kind damage to his brain in which there is no way for use to know from day to day what will be affected. Since diagnosis we have tried combinations of medications to try to get the best control over his seizures. These medications are very hard on him, each of them causing different side effects. Many have caused mood alterations, nausea and vomiting, weight gain, aggressive behavior, lethargy with mild or no change in his seizure activity.

After numerous testing MRI's, CAT scans, EEG's, 24hr EEG's, Photosensitivity testing, sleep study with EEG, testing for Autism, genetic testing for autism, we still have not found the cause of his seizures. One doctor believes it could be the head trauma caused at birth, another believes there could be a connection with his one-year vaccines, or a genetic problem. We might never know..

We have been very blessed so far. Bryce is still very high functioning at this time with the main areas effected being his speech, cognitive retention, and some occupational motor skills. Even with everything Bryce has been through in the last six years he has always kept his upbeat happy attitude and has had the best heart all the way. He is very outgoing and believes everyone is his friend. He does not see the bad in people or in his situation. I wish I were as strong as him. He has not shown signs that he knows he is different from other kids his age. We are doing everything in our power to let him live as normal of a life as possible. We try to keep him as active as we can. He plays little league baseball for the Rangers. His main goal in life right now is to become a "Pokemon Master"!! I hope you get the chance to meet this sweet boy of ours he is pretty amazing!!!


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